Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support
2013 · Orphanet Journal of Rare Diseases · 313 citations
https://doi.org/10.1186/1750-1172-8-22
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Yvonne Zurynski
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Yvonne Zurynski is an academic researcher. The author has contributed to research in topics: Primary Care and Health Outcomes & Child and Adolescent Health & Adolescent and Pediatric Healthcare. The author has an h-index of 37, co-authored 219 publications.
ORCID: 0000-0001-7744-8717Papers by this author
worksAustralian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays
2017 · Orphanet Journal of Rare Diseases · 224 citations
https://doi.org/10.1186/s13023-017-0622-4
A qualitative study of health care providers’ perceptions and experiences of working together to care for children with medical complexity (CMC)
2018 · BMC Health Services Research · 67 citations
https://doi.org/10.1186/s12913-018-2857-8
Childhood interstitial lung diseases in immunocompetent children in Australia and New Zealand: a decade’s experience
2017 · Orphanet Journal of Rare Diseases · 60 citations
https://doi.org/10.1186/s13023-017-0637-x
Built to last? Barriers and facilitators of healthcare program sustainability: a systematic integrative review
2023 · Implementation Science · 60 citations
https://doi.org/10.1186/s13012-023-01315-x
Significant reductions in tertiary hospital encounters and less travel for families after implementation of Paediatric Care Coordination in Australia
2018 · BMC Health Services Research · 51 citations
https://doi.org/10.1186/s12913-018-3553-4
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