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A study to Explore the Experiences of Advance Care Planning Amongst Family Caregivers of People with Advanced Dementia.

Susan Ashton-2013-01-01-Edge Hill University Research Information Repository (Edge Hill University)

TL;DRAbstract

A study to explore the experiences of Advance Care Planning amongst family caregivers of people with advanced dementia.
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\nAim
\nThe purpose of this study was to gain an understanding of Advance Care Planning (ACP) process and experiences from the perspectives of family caregivers as proxy decision makers for a relative with advanced dementia at the end of life.
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\nMethods
\nThe study involved family caregiver experiences of Advance Care Planning within a specialist dementia unit. A qualitative approach using single cases (close family relatives) was chosen for the study. Data were recorded using semi structured interviews from a self selecting onvenience sample of twelve family relatives of residents with advanced dementia in a long term care setting. All respondents had been involved in proxy decision
\nmaking relating to the care and treatment of their relative with advanced dementia. Data were analysed using content analysis.
\n
\nResults&#13

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A study to explore the experiences of Advance Care Planning amongst family caregivers of people with advanced dementia.
\n
\nAim
\nThe purpose of this study was to gain an understanding of Advance Care Planning (ACP) process and experiences from the perspectives of family caregivers as proxy decision makers for a relative with advanced dementia at the end of life.
\n
\nMethods
\nThe study involved family caregiver experiences of Advance Care Planning within a specialist dementia unit. A qualitative approach using single cases (close family relatives) was chosen for the study. Data were recorded using semi structured interviews from a self selecting onvenience sample of twelve family relatives of residents with advanced dementia in a long term care setting. All respondents had been involved in proxy decision
\nmaking relating to the care and treatment of their relative with advanced dementia. Data were analysed using content analysis.
\n
\nResults&#13

Keywords

DementiaAdvance care planningFamily caregiversPsychological interventionNursingPsychologyQualitative researchMedicine

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